And He Says NO
Late the other night, well let's say early one morning at 4am, Baby K decided…
The label that my middle child receives down the road as we venture into the path of a possible new diagnosis really doesn’t matter to me. Aj’s Dad and I have been raising the same boy for the past seven years so whatever label is placed upon our son really doesn’t matter as it pertains to anything other than giving us something to research better. You see, no one lives our life. No one outside of our home has experienced the real Aj.
With no medication interfering with Aj in any way positive nor negative, the school is starting to get a glimpse into what our world has been like for years with Aj. He’s either withdrawn and down or hyper and happy. This is why there is certainly a mood aspect to our son but there is also this other side of Aj where he shows anxiety, he is anxious about new things and anxious that life needs go to a certain way. Then there is that routine driven side of Aj and that mentality that once he has it in his head something is correct, there is no talking him out of it.
There is the side to Aj where you could tell him the sky is blue and if he is convinced at that day and time that the sky is purple, then the sky is purple. It’s that simple for Aj. Aj is a complex child yet also very simple. The real world rules don’t necessarily apply to our sweet Aj, he is unique and in some ways unique is a great thing while in other ways unique can get into the way of a public school child. Aj is starting to show me signs of concern in the public school environment, I wonder if he will ever make real friends, real long term friends. I wonder if Aj will ever have a life that is one that people classify as normal.
Then I realize … those wonders are my anxiety kicking in. As I watch Aj suffer with some anxiety symptoms, I notice my generalized anxiety disorder starts to chime in. It’s this emotional connection that Aj’s counselor has advised me to separate better with that keeps me wondering and worrying about things outside of my control. I am better at controlling my anxiety, after all I haven’t had medication for anxiety in many years. I have learned to fight anxiety and I will teach my son the same skills, as I have with my oldest.
Aj is a happy child, if anyone asks I would say he is compassionate with a huge heart but he lacks the understanding of sarcasm or snide comments. You see, with Aj you have to say what you mean and mean what you say because if not, he gets frustrated. Aj doesn’t comprehend sarcasm for the most part, yet there are a rare few moments that he actually may look at you after a quick witted comment and smirk as if he got it. Those moments are rare. For the most part, Aj is a child who needs people to say what they mean and mean what they say.
Aj cannot have people in his home environment that cannot be that person for him, it’s not easy. My daughter and his younger brother have worked hard and continue to work as a family to ensure Aj has a safe, loving home environment. That means far too often we have to bite our sarcastic tongue and say things the way Aj needs to hear them. While we find humor in sarcasm, Aj does not. In my mind, it’s not that difficult but when you have a tween daughter and younger sibling of a child like this, it can cause a ruckus from time to time.
I don’t want to deter my daughter and my other son from being who they are to their core, but I want to teach them to respect who Aj is at his core as well. It’s a juggling act around here most days. Whatever label Aj ends up with for a diagnosis, I am okay with that, because after all, I have been raising him for seven years so no matter what they say “he has”, reality is HE IS my son, always has been and always will. I will always be here fighting for him right beside him and encouraging him to move forward to lead a happy, healthy life.
As I do with my other children. That is my job. My job is Mom.